
(All times listed are in Eastern Time)
8:30 AM | Sign on and Exhibits |
8:55 AM | Introduction and Welcome Remarks Hubert Fernandez |
Moderator: | Marie Saint-Hilaire |
9:00 AM | Convention vs Innovation I: Telemedicine/Virtual Visits Should Now Be A Preferred Option For Following Patients With PD After Diagnosis |
Agree : Zoltan Mari | |
Disagree : Susan Fox | |
10:00 AM | Convention vs Innovation II: Time To Abandon Clinician-Administered Scales As The Primary Outcome Measure Of Symptomatic And Disease Modifying Trials in Parkinson's Disease |
Agree : Tiago Mestre | |
Disagree : Tanya Simuni | |
11:00 AM | Break/Exhibits |
Moderator: |
Liana Rosenthal |
11:30 AM |
Nature vs. Nurture ENCORE topic: Genetically-Targeted Trials And Not Immunotherapy-Based Trials Will Lead Us To Our First Successful Disease Modifying Therapy |
Agree : Anne-Marie Willis | |
Disagree : Andrew Siderowf |
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12:30 PM | Hope vs. Hype I: Istradefylline's "non-dopaminergic" Mechanism of Action Provides a Unique And Significant Advantages in PD Treatment |
Agree : Peter LeWitt | |
Disagree : Michael Schwarzschild | |
1:30 PM | Break/Exhibits |
2:00 PM | Hope vs. Hype II: Closed Loop Technology Will Provide More Meaningful Improvement vs. Directional Leads In Deep Brain Stimulation |
Agree : Helen Bronte-Stewart | |
Disagree : Aristide Merola | |
3:00 PM | How to Design A Clinical Trial in COVID-19 Times Hubert Fernandez |
4:00 PM | ADJOURN |
(All times listed are in Pacific Time)
3:00 - 3:50 PM |
Forum A: Specialists discuss IUT protocol consensus Moderator: Juan Gonzalez Valez, MD, PhD (UCSF) |
3:00 - 3:50 PM | Forum B: Building a Patient Family Group for ATM Moderator: Sandra Gilbert, PhD (Cooley's Anemia Foundation) |
4:00 PM | Welcome and overview - Day 2 Tippi C. MacKenzie, MD (UCSF) |
4:05 PM | Family Experience 2 Conversations with families living lives affected by ATM |
4:30 PM | Postnatal therapies for ATM Moderator: Vip Viprakasit, MD, DPhil |
Postnatal transfusion protocols Elliot Vichinsky, MD Ashutosh Lal, MD (UCSF) |
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Postnatal hematopoetic stem cell transplantation Alexis Thompson, MD, MPH (Northwestern Feinberg School of Medicine) |
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Transfusion and transplantation in Thailand Vip Viprakasit, MD, PhD (Siriraj Hospital, Mahidol University) |
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5:05 PM | Live panel: Interdisciplinary discussion regarding opportunities and challenges to providing postnatal care for ATM Moderator: Vip Viprakasit, MD, DPhil |
5:30 PM | Thalassemia International Federation (TIF) |
5:35 PM | BREAK |
5:40 PM | Live Panel: Discussion with families and providers Moderator: Barbara Koenig, PhD, Director, UCSF Bioethics Program Introduction by Craig Butler, Executive Director, Cooley's Anemia Foundation |
6:25 PM | Close Meeting Tippi C. MacKenzie, MD (UCSF) |
6:35 PM | ADJOURN |