Watch Video |
Welcome Mara L Becker, MD, MSCE Duke Clinical Research Institute (DCRI) |
Watch Video |
Brief Overview of the Pediatric Trials Network Kanecia Zimmerman, MD, MPH DCRI |
Watch Video |
INCLUDE Project Overview Melissa Parisi, MD, PhD Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) |
Watch Video |
Clinical Overview: Clinical variability and Therapeutic Challenges in individuals with Down syndrome Priya Kishnani, MD Duke University Medical Center |
Watch Video |
Q & A – Open discussion |
Watch Video |
Community Advocacy Perspective: Working with Advocacy Partners to Advance Clinical Trials in Individuals with Down syndrome Ashley Helsing Adrian Forsythe National Down Syndrome Society Tavrick Lawless Jacob Murasko Marla Murasko Carol Nye Sara Nye NDSS DS-AMBASSADORS ® |
Watch Video |
Individual/Family Perspective: How Can We Engage Families Meaningfully for Current and Future Research? Michelle Pfeiffer Matthew Schwab Michelle Schwab Emily Mondschein Gigi’s Playhouse |
Watch Video |
DS Connect: Connecting Families to Research Opportunities that INCLUDEs Them Sujata Bardhan, PhD NICHD |
Watch Video |
Moderated Q&A Session with stakeholders Moderator: Maria Stanley, MD University of Wisconsin-Madison Panelists: Julie Hajewski University of Wisconsin-Madison Sujata Bardhan, PhD NICHD NDSS DS-AMBASSADORS ® Gigi's Playhouse |
Watch Video |
Lessons Learned/Best practices from the Pharmacokinetics, Pharmacodynamics, and Safety Profile of Understudied Drugs Administered to Children Per Standard of Care (POP) study Elena Soler, MPH DCRI |
Watch Video |
POP02 Down syndrome Cohort: Lessons Learned and Looking Forward Kate Pawlowski Boston Children’s Hospital Jessica L. Van Bree, BS University of Wisconsin-Madison |
Watch Video |
Q & A – Open discussion |
Watch Video |
ADHD in children with Down syndrome Anna Esbensen, PhD Cincinnati Children’s |
Watch Video |
Protocol Discussion: Guanfacine for Hyperactivity in Children with Down Syndrome (HYPEbeGONE_DS) Mara Becker, MD, MSCE DCRI |
Watch Video |
Q&A and Feedback on the protocol Moderator: Jenny Jackman DCRI Panelists: Mara Becker, MD, MSCE Kylie Opel, JD DCRI Ravinder Anand The Emmes Company |
Watch Video |
Wrap up/adjourn – Next Steps Mara Becker, MD, MSCE DCRI |