4:00 PM Surviving with Joy - a short film
4:10 PM Welcome and overview - Day 1
Tippi MacKenzie, MD (UCSF)
4:20 PM
Family Experience 1
Conversations with families about their diagnosis and treatment journeys
4:50 PMLessons from Patient Registries
Moderator: Ali Amid, MD

Canada Registry of ATM outcomes 
Ali Amid, MD (Children's Hospital of Eastern Ontario, University of Ottawa) 
Hong Kong Registry of ATM outcomes 
Wilson YK Chan, MBBS (Queen Mary Hospital, Hong Kong University) 

UCSF Registry - focus on neurological outcomes
Marisa Schwab, MD, Billie Lianoglou, LCGC (UCSF)

Meta-analysis of aggregated registry data

Tachjaree Panchalee, MD (Siriraj Hospital, Mahidol University) 

Live Q&A
5:50 PM  Prenatal Screening and Diagnosis
Moderator: Mary Norton, MD

Genetic diagnosis of ATM
John Waye, PhD (McMaster University)  

Prenatal thalassemia screening algorithm
Mary Norton, MD (UCSF)

Ultrasound diagnosis of hydrops
Pornpimol Ruangvutilert, MD, PhD (Siriraj Hospital, Mahidol University)

Live Q&A
6:40 PM Optimizing fetal therapy for ATM
Introductions: Keith Ogasawara, MD

Managing pregnancies affected by ATM 
Juan González Velez, MD, PhD (UCSF)
Adoption of IUT as a therapy for ATM in the State of Hawaii
Keith Ogasawara, MD (Kaiser Permanente Hawaii)

In utero transfusion protocol
Greg Ryan, MB (Ontario Fetal Centre, University of Toronto)

In utero hematopoietic stem cell transplantation - Phase 1 clinical trial
Tippi MacKenzie, MD (UCSF)
7:15 PM Live panel: Interdisciplinary discussion regarding prenatal care for ATM
Moderator: Tippi MacKenzie, MD
Juan González Velez, MD, PhD
Roberta Keller, MD (UCSF)
Keith Ogasawara, MD
Greg Ryan, MB
7:40 PMClose Meeting
Tippi MacKenzie, MD 

3:00 - 3:50 PM

Forum A: Specialists discuss IUT protocol consensus
Moderator: Juan González Velez, MD, PhD (UCSF)

3:00 - 3:50 PM Forum B: Building a patient-family group for ATM
Moderator: Sandra Gilbert, PhD (Cooley's Anemia Foundation)
This session is for patient/families living with ATM
4:00 PM

Welcome and overview - Day 2
Tippi MacKenzie, MD (UCSF)

4:05 PM Family Experience 2
Conversations with families living with ATM
4:35 PMPostnatal therapies for ATM
Moderator: Vip Viprakasit, MD, DPhil

Postnatal transfusion protocols
Elliott Vichinsky, MD (UCSF)

Postnatal hematopoietic stem cell transplantation
Alexis Thompson, MD, MPH (Lurie Children's Hospital of Chicago, Northwestern Feinberg School of Medicine)

Transfusion and transplantation in Thailand
Vip Viprakasit, MD, PhD (Siriraj Hospital, Mahidol University)
5:05 PM Live panel: Interdisciplinary discussion regarding opportunities and challenges to providing postnatal care for ATM
Moderator: Vip Viprakasit, MD, DPhil
Supachai Ekwattanakit, MD, PhD (Siriraj Thalassemia Center, Mahidol University)
Alexis Thompson, MD, MPH
Elliott Vichinsky, MD
5:30 PM Thalassaemia International Federation (TIF)
Michael Angastiniotis, MBChB
5:40 PM Live Panel: Discussion with families and providers
Introduction by Craig Butler, Executive Director, Cooley's Anemia Foundation
Moderator: Barbara Koenig, PhD, Director, UCSF Bioethics Program
Melanie Kirby-Allen, MD (Hospital for Sick Children)
Billie Lianoglou, LCGC (UCSF)
Mara Rosner, MD (Johns Hopkins Medicine)
Family Representatives
6:25 PM Close Meeting
Tippi MacKenzie, MD (UCSF)