Watch Video
watch nowSurviving with Joy - a short film
Watch Video watch nowWelcome and overview - Day 1
Tippi MacKenzie, MD (UCSF)
Watch Videowatch nowFamily Experience 1
Conversation with families about their diagnosis and treatment journeys
Watch Videowatch nowLessons from Patient Registries
Introduction: Ali Amid, MD
Watch Videowatch nowCanada Registry of ATM outcomes 
Ali Amid, MD (Children's Hospital of Eastern Ontario, University of Ottawa) 
Watch Videowatch nowHong Kong Registry of ATM outcomes 
Wilson YK Chan, MBBS (Queen Mary Hospital, Hong Kong University) 
Watch Video watch nowUCSF Registry - focus on neurological outcomes
Marisa Schwab, MD, Billie Lianoglou, LCGC (UCSF)
Watch Video Meta-analysis of aggregated registry data

Tachjaree Panchalee, MD (Siriraj Hospital, Mahidol University) 

Watch Video watch nowLive Q&A
Watch Video watch nowPrenatal Screening and Diagnosis
Introduction: Mary Norton, MD
Watch Video watch nowGenetic diagnosis of ATM
John Waye, PhD (McMaster University)  
Watch Video watch nowPrenatal thalassemia screening algorithm
Mary Norton, MD (UCSF)
Watch Video watch nowUltrasound diagnosis of hydrops
Pornpimol Ruangvutilert, MD, PhD (Siriraj Hospital, Mahidol University)
Watch Video watch nowLive Q&A
Watch Video watch nowOptimizing fetal therapy for ATM
Introduction: Keith Ogasawara, MD
Watch Video watch nowManaging pregnancies affected by ATM 
Juan González Velez, MD, PhD (UCSF)
Watch Video watch nowAdoption of IUT as a therapy for ATM in the State of Hawaii
Keith Ogasawara, MD (Kaiser Permanente Hawaii)
Watch Video watch nowIn utero transfusion protocol
Greg Ryan, MB (Ontario Fetal Centre, University of Toronto)
Watch Video watch nowIn utero hematopoietic stem cell transplantation - Phase 1 clinical trial
Tippi MacKenzie, MD (UCSF)
Watch Video watch nowLive panel: Interdisciplinary discussion regarding prenatal care for ATM
Moderator: Tippi MacKenzie, MD
Juan González Velez, MD, PhD
Roberta Keller, MD (UCSF)
Keith Ogasawara, MD
Greg Ryan, MB

Watch Video

Specialists forum: In Utero Transfusion (IUT) protocol consensus
Moderator: Juan González Velez, MD, PhD, Billie Lianoglou, LCGC (UCSF)

Watch Video

watch nowWelcome and overview - Day 2
Tippi MacKenzie, MD (UCSF)

Watch Video watch nowFamily Experience 2
Conversation with families living with ATM
Watch Video Postnatal therapies for ATM
Introduction: Vip Viprakasit, MD, DPhil
Watch Video watch nowPostnatal transfusion protocols
Elliott Vichinsky, MD (UCSF)
Watch Video watch nowPostnatal hematopoietic stem cell transplantation
Alexis Thompson, MD, MPH (Lurie Children's Hospital of Chicago, Northwestern Feinberg School of Medicine)
Watch Videowatch nowTransfusion and transplantation in Thailand
Vip Viprakasit, MD, PhD (Siriraj Hospital, Mahidol University)
Watch Video watch nowLive panel: Interdisciplinary discussion regarding opportunities and challenges to providing postnatal care for ATM
Moderator: Vip Viprakasit, MD, DPhil
Kay Thwe Aung, MD (Mandalay Children's Hospital)
Maria Cecilia Cruz, MD (Philippine Children's Medical Center)
Supachai Ekwattanakit, MD, PhD (Siriraj Thalassemia Center, Mahidol University)
Aye Aye Khaing, MD (Yangon Children′s Hospital)
Sandhya Kharbanda, MD (UCSF)
Alexis Thompson, MD, MPH
Elliott Vichinsky, MD
Watch Video watch nowThalassaemia International Federation (TIF)
Michael Angastiniotis, MBChB
Watch Video watch nowLive Panel: Discussion with families and providers
Introduction by Craig Butler, Executive Director, Cooley's Anemia Foundation
Moderator: Barbara Koenig, PhD, Director, UCSF Bioethics Program
Melanie Kirby-Allen, MD (Hospital for Sick Children)
Billie Lianoglou, LCGC (UCSF)
Mara Rosner, MD (Johns Hopkins Medicine)
Family Representatives