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Watch Video |
watch nowSurviving with Joy - a short film |
| Watch Video | watch nowWelcome and overview - Day 1
Tippi MacKenzie, MD (UCSF) |
| Watch Video | watch nowFamily Experience 1
Conversation with families about their diagnosis and treatment journeys |
| Watch Video | watch nowLessons from Patient Registries Introduction: Ali Amid, MD |
| Watch Video | watch nowCanada Registry of ATM outcomes Ali Amid, MD (Children's Hospital of Eastern Ontario, University of Ottawa) |
| Watch Video | watch nowHong Kong Registry of ATM outcomes Wilson YK Chan, MBBS (Queen Mary Hospital, Hong Kong University) |
| Watch Video |
watch nowUCSF Registry - focus on neurological outcomes Marisa Schwab, MD, Billie Lianoglou, LCGC (UCSF) |
| Watch Video | Meta-analysis of aggregated registry data Tachjaree Panchalee, MD (Siriraj Hospital, Mahidol University) |
| Watch Video | watch nowLive Q&A |
| Watch Video | watch nowPrenatal Screening and Diagnosis Introduction: Mary Norton, MD |
| Watch Video | watch nowGenetic diagnosis of ATM John Waye, PhD (McMaster University) |
| Watch Video |
watch nowPrenatal thalassemia screening algorithm Mary Norton, MD (UCSF) |
| Watch Video | watch nowUltrasound diagnosis of hydrops Pornpimol Ruangvutilert, MD, PhD (Siriraj Hospital, Mahidol University) |
| Watch Video | watch nowLive Q&A |
| Watch Video | watch nowOptimizing fetal therapy for ATM Introduction: Keith Ogasawara, MD |
| Watch Video | watch nowManaging pregnancies affected by ATM Juan González Velez, MD, PhD (UCSF) |
| Watch Video | watch nowAdoption of IUT as a therapy for ATM in the State of Hawaii Keith Ogasawara, MD (Kaiser Permanente Hawaii) |
| Watch Video | watch nowIn utero transfusion protocol Greg Ryan, MB (Ontario Fetal Centre, University of Toronto) |
| Watch Video | watch nowIn utero hematopoietic stem cell transplantation - Phase 1 clinical trial Tippi MacKenzie, MD (UCSF) |
| Watch Video | watch nowLive panel: Interdisciplinary discussion regarding prenatal care for ATM Moderator: Tippi MacKenzie, MD Juan González Velez, MD, PhD Roberta Keller, MD (UCSF) Keith Ogasawara, MD Greg Ryan, MB |
| Watch Video |
Specialists forum: In Utero Transfusion (IUT) protocol consensus |
| Watch Video | watch nowWelcome and overview - Day 2 |
| Watch Video | watch nowFamily Experience 2 Conversation with families living with ATM |
| Watch Video | Postnatal therapies for ATM Introduction: Vip Viprakasit, MD, DPhil |
| Watch Video | watch nowPostnatal transfusion protocols Elliott Vichinsky, MD (UCSF) |
| Watch Video | watch nowPostnatal hematopoietic stem cell transplantation Alexis Thompson, MD, MPH (Lurie Children's Hospital of Chicago, Northwestern Feinberg School of Medicine) |
| Watch Video | watch nowTransfusion and transplantation in Thailand Vip Viprakasit, MD, PhD (Siriraj Hospital, Mahidol University) |
| Watch Video | watch nowLive panel: Interdisciplinary discussion regarding opportunities and challenges to providing postnatal care for ATM Moderator: Vip Viprakasit, MD, DPhil Kay Thwe Aung, MD (Mandalay Children's Hospital) Maria Cecilia Cruz, MD (Philippine Children's Medical Center) Supachai Ekwattanakit, MD, PhD (Siriraj Thalassemia Center, Mahidol University) Aye Aye Khaing, MD (Yangon Children′s Hospital) Sandhya Kharbanda, MD (UCSF) Alexis Thompson, MD, MPH Elliott Vichinsky, MD |
| Watch Video | watch nowThalassaemia International Federation (TIF) Michael Angastiniotis, MBChB |
| Watch Video | watch nowLive Panel: Discussion with families and providers Introduction by Craig Butler, Executive Director, Cooley's Anemia Foundation Moderator: Barbara Koenig, PhD, Director, UCSF Bioethics Program Melanie Kirby-Allen, MD (Hospital for Sick Children) Billie Lianoglou, LCGC (UCSF) Mara Rosner, MD (Johns Hopkins Medicine) Family Representatives |